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Current Data Requests

The Maine Health Data Organization has, in accordance with Rule Chapter 120: Release of Data to the Public, instituted a process for the purpose of notifying users and providers of health care data when the MHDO receives a request for health data and accepts that request. In addition to sending electronic notification to interested parties and to providers that are responsible for the submission of the data, we provide the summary page of the ten most recent data requests below. If you are interested in seeing requests prior to the last on this page, they can be found on our Data Requests - Archived web page.

For all data requests, the data providers or other interested parties may submit comments related to the data request to the Executive Director. To be considered, comments must be received by the Executive Director in writing (MHDO's Contact webpage has the mailing address) or by electronic notification no later than thirty business days after the initial posting of the data request on the MHDO web site. If the Executive Director determines that (a.) the comments received are of significant enough importance to delay the release of data and/or (b.) additional information is required from the requesting party to address the comments; then the data shall not be released until the additional information has been received from the requesting party and an additional review is conducted by the Executive Director or the MHDO Data Release Subcommittee, as applicable, to ensure that the requesting party conforms to all applicable requirements of this chapter.

The Executive Director will bring all comments received from the data providers and or other interested parties for the release of Level III Data to the MHDO Data Release Subcommittee for consideration.

Individuals who want to opt out of a specific Level III data request may do so by completing this MHDO Choice Disclosure Form no later than 30 business days after the initial posting of the data request. If you opt out of Level III data requests, you will remain opted out unless you choose to opt back in via completion of the MHDO Choice Disclosure Form.

NOTE: If you would like to be notified when new data requests are posted, please email your request.

Request # Organization and Data Applicant Consultant Comment Close Date Data Requested Purpose of Request, Benefits to the Citizens of Maine, and Public Reporting Plans Status
(Approved or
Withdrawn)
2026080301 ME CDC,
Helen Price-Wharff
N/A 11/16/2026 MHDO Ad Hoc Request – Level I Q1 2024 – Q1 2026 Prescriber Data for Sofosbuvir and Velpatasvir (Hepatitis C Medication) The purpose of our data request is to understand how many and which types of healthcare clinicians are currently providing direct-acting antiviral (DAA) simplified treatment medications for hepatitis C. The data will identify who has provided this type of prescription (in the last 2 years) and in what areas (by municipalities and/or counties) of the state. Secondarily, this list of healthcare clinicians may be utilized by ME CDC staff to reach out to some of these prescribers in order to facilitate hepatitis C access and linkage to care. The two medications we would like prescriber data for are Sofosbuvir/Velpatasvir (brand name=Epclusa) and Glecaprevir/Pibrentasvir (Brand name=Mavyret). This project will benefit the people of Maine by identifying the existing healthcare resources providing hepatitis C treatment as well as gaps in care availability, such as underserved regions. Pending
2026042301 ME CDC,
Anne Sites
N/A 11/16/2026 MHDO Level II Q1 2022 – Q1 2026 Custom Extract: Includes Medical Claims, Medical Eligibility, Pharmacy Claims, Hospital Inpatient and Outpatient Encounters, MHDO De-Identified Person Directory including City/ZIP, FIPS Code, Race & Ethnicity. Maine CDC has identified an increase in new Human Immunodeficiency Virus (HIV) diagnoses in Penobscot County, primarily among people who inject drugs (PWID) and people who are unhoused. Over the previous five years in Penobscot County there was an average of two new HIV diagnoses per year overall, and one new diagnosis per year among PWID. Between October 2023-April 2026, 41 cases of HIV have been linked to the outbreak in Penobscot County representing an acceleration in transmission that demands a comprehensive public health response. Maine’s five-year Integrated HIV Prevention and Care Plan outlines the goals and strategies to address HIV in Maine. A central goal is to diagnose all people with HIV as early as possible. Several Maine statutes have been enacted to help improve HIV testing and thus timely diagnosis of HIV. §19203-G. (HIV testing in conjunction with testing for possible sexually transmitted diseases and infections), §19203-A. (Voluntary informed consent required) [includes a provision for opt-out testing for pregnant women]. The purpose of this analysis is to understand HIV testing trends and identify missed opportunities for diagnosis, in order to inform and strengthen on-going HIV response measures across the state. The specific objectives of this analysis are to: 1) Understand HIV testing trends where risk factors or concerns for HIV have been identified, 2) Determine whether HIV testing is being conducted when other STIs are being tested, consistent with §19203-G, 3) Characterize overall HIV testing trends across Maine over time, 4) Identify potential missed opportunities HIV testing and diagnosis among persons who were ultimately diagnosed with HIV by examining their healthcare utilization in the 12 months prior to diagnosis, and 5) Assess whether pregnant persons are receiving at least one HIV test during their pregnancy, consistent with §19203-A. Maine Health Data Organization (MHDO) claims data will be used to analyze HIV testing patterns across clinical settings and populations in Maine. Specifically, MHDO data will allow us to identify healthcare encounters at which HIV testing did or did not occur, stratified by relevant clinical and demographic factors. These data will be analyzed in conjunction with data from existing HIV surveillance systems maintained by Maine CDC, including the Enhanced HIV/AIDS Reporting System (eHARS), to provide a comprehensive picture of testing gaps and opportunities. This project directly benefits the people of Maine by supporting earlier detection and diagnosis of HIV, which is critical to both individual health outcomes and community-level prevention. Evidence consistently shows that individuals who are aware of their HIV status can access life-saving antiretroviral therapy, achieve viral suppression, and effectively eliminate the risk of transmitting HIV to others. By identifying gaps in testing practices, including missed opportunities in clinical settings and disparities in testing among de-identified pregnant persons, this analysis will provide actionable data to help improve provider adherence to testing guidelines, target public health interventions, and ultimately reduce HIV transmission, morbidity, and mortality in Maine. The findings will be used to inform clinical guidance, support provider education, and strengthen Maine's response to the current outbreak in Penobscot County and beyond. Pending
2026082401 Tufts University School of Medicine,
Carissa Cueva
N/A 11/10/2026 MHDO Ad Hoc Request – Level 1 Hospital Encounter Data: Volume of Obstetric-Related ED Encounters Following L&D Closures The primary aim of this study is to evaluate whether closure of Labor & Delivery (L&D) units in rural Maine is associated with changes in emergency obstetric care utilization. Specifically, we will aim to determine whether the number of obstetric presentations and deliveries managed in Maine EDs changed following the closure of local L&D units. This will be a retrospective quantitative study examining changes in obstetric care utilization before and after L&D unit closures in rural Maine. We will use statewide ED utilization data from the Maine Health Data Organization (MHDO). Data will be used to identify obstetric-related ED encounters and, where available, delivery-related encounters. We will compare the number and proportion of obstetric ED visits before and after L&D closures at hospitals located in or serving communities affected by a closure. We will examine trends over time and compare affected hospitals with hospitals that maintained L&D services during the study period when appropriate. The primary outcome will be the change in volume of obstetric-related ED encounters following L&D closure. This study will benefit the citizens of Maine by evaluating how the loss of hospital-based labor and delivery services affects access to emergency obstetric care, particularly for patients living in rural and medically underserved communities. By analyzing statewide emergency department utilization before and after L&D closures, this study will identify whether closures are associated with changes in the volume and types of obstetric emergencies presenting to EDs, as well as changes in hospital admissions and transfers. These findings can help Maine policymakers, hospitals, EMS agencies, and communities identify emerging gaps in emergency obstetric care and determine where additional resources, training, transportation capacity, or regional coordination may be needed. Pending
2026060401 ME CDC,
Nancy Birkhimer
University of Southern Maine, Cutler Institute 11/10/2026 MHDO Level II Q1 2025 - Q4 2026 Hospital Inpatient and Outpatient Encounters including City/ZIP, DOB and Race & Ethnicity. The Maine Center for Disease Control and Prevention's (ME CDC) mission is to provide leadership, expertise, information, and tools (such as public health dashboards and reports) to assure conditions in which all Maine people can be healthy. Surveillance of chronic disease, maternal and child health, injury, and suicide is essential to efforts to reduce morbidity and preventable mortality in Maine. The ME CDC Division of Disease Prevention epidemiology team proposes to use MHDO’s inpatient, outpatient, and emergency department hospital discharge data to: (1) Conduct routine surveillance and monitoring of core chronic disease, maternal and child health indicators, and injury indicators for the Maine Shared Community Health Needs Assessment, a collaborative partnership between Central Maine Healthcare (CMHC), Northern Light Health (NLH), MaineGeneral Health (MGH), MaineHealth (MH), the Maine Center for Disease Control and Prevention (Maine CDC), and the Maine Community Action Partnership (MeCAP). (https://www.maine.gov/dhhs/mecdc/phdata/MaineCHNA/maine-interactive-health-data.shtml) and publicly post the indicators in cardiovascular health and diabetes prevention, asthma surveillance, suicide and injury prevention, maternal and child health surveillance, and other core activities of the Division of Disease Prevention. (2) Conduct analyses of risk factors associated with preventable morbidity and mortality due to chronic disease, maternal and child health, injury, and suicide. (3) Examine the association between social determinants of health and preventable morbidity and mortality. Analyses will include identification of disparities by race, ethnicity, age, and residential geography. These results of these analyses will enable Maine's public health leaders to conduct effective program planning, obtain crucial federal funding, and make data-informed decisions to support the health and well-being of the people of Maine. The results will also be used to inform legislative and federal reporting as needed and/or required. Pending
2026063002 Maine Cancer Foundation,
Ray Ruby
Human Services Research Institute 9/9/2026 MHDO Level II Q1 2025 – Q4 2025 Hospital Inpatient and Outpatient Encounter Data, Medical Claims, Medical Eligibility, Pharmacy Claims, Pharmacy Eligibility and Practitioner Identifiable Data including City/Zip, DOB, Race & Ethnicity, FIPS Codes, Integrated Cancer-Incidence Registry Data, Integrated Vital Statistics Death Data and MHDO De-Identified Person Directory. This data request seeks to add additional years of MHDO data to previously approved data request number 2025031901. The Maine Cancer Foundation (MCF) used MHDO data to create Maine's first comprehensive Cancer Blueprint focusing on lung and bronchus cancer and then expanded to include colorectal cancer measures. The goal of the Maine Cancer Blueprint is to increase knowledge and awareness of issues related to cancer, expand access to care, and support lifestyle changes to reduce cancer risk by exploring inequities and variations in cancer rates, by examining factors that may influence cancer risk, and analyzing how factors such as social determinants of health, race, ethnicity, insurance status, and socio-economic status influence health outcomes. The current website can be found here https://mainecancer.org/maine-cancer-blueprint. The website provides credible, detailed data points that are publicly available to Maine clinical experts, residents and others who are interested in actionable statistics related to cancer in Maine. The MCF is moving on to the next phase of this project with the focus on updating existing measures and adding more detailed measures on lung cancer, colorectal cancer, and breast cancer. The Human Services Research Institute (HSRI) is supporting MCF with using the MHDO data for identifying and creating measures that will report variations in cancer incidence, mortality, cost, screening rates, and access to care across Maine. Pending
2026052701 Northern Light Health N/A 8/13/2026 MHDO Level II Q1 2026 – Q4 2026 Hospital Inpatient and Outpatient Encounter Data, including City/ZIP, Race & Ethnicity, Practitioner Identifiable data and Integrated Cancer-Incidence Registry Data. This data request seeks to add an additional year of MHDO data to previously approved data request number 2025051901. Northern Light Health (NLH) will continue to use the MHDO’s inpatient and outpatient hospital data to support its member organizations and their planning efforts to advance initiatives that are important to the hospital system, the people of Maine, and the State’s healthcare system. To improve the health of the people and communities served, NLH will continue to analyze patient origin and demographics, locations of healthcare services and providers, healthcare services utilization rates and volumes and healthcare services provided, including diagnoses and procedures. The benefits to the citizens of Maine include optimized resource allocations, better planning by understanding care delivery factors like distances traveled by patients, and refined program planning for specific age groups. Race and ethnicity data addresses gaps around health care equity. The MHDO’s integrated Cancer-Incidence Registry data informs developments in Oncology services that are especially important given reported increases in overall cancer incidence and among younger age groups. Provider identification data supports decision-making for future placement of services and/or collaborative efforts. Pending
2026051902 ME CDC
Chloe Manchester
N/A 8/3/2026 MHDO Level I Q1 2021 – Q4 2025 Custom Extract: Includes Medical Claims, Member ID, Sex, DOB, County of Residence, and Anonymous Payer Name/ID This project aims to characterize cancer screening rates across Maine using the Maine Health Data Organization’s all-payer claims data, assessing adherence to national evidence-based guidelines across five cancer types: breast, cervical, colorectal, lung, and prostate. Using MHDO’s administrative claims data spanning 2021–2025, the analysis will produce county-level screening estimates stratified by age group, sex, and payer type, enabling identification of geographic, demographic, and insurance-related disparities in preventive care utilization. Benefits to the People of Maine: Maine faces a distinct set of public health challenges that make this work especially important. The state has one of the oldest populations in the nation, a large rural geography, and persistent health disparities across its 16 counties, all of which can limit access to preventive care. By identifying which communities are under screened and why, this project will provide policymakers, health systems, community health workers, and insurers with evidence to direct resources where they are needed most. Earlier detection of breast, cervical, colorectal, lung, and prostate cancers is associated with improved health outcomes and reduced treatment burden for Maine residents. Findings will also illuminate how insurance coverage influences screening behavior, supporting equity-focused program design for uninsured and publicly insured Mainers. Tracking trends from 2021 through 2025 will additionally reveal how Maine communities recovered from COVID-19-related disruptions to preventive care, helping health leaders plan future service delivery and outreach efforts. Withdrawn
2026051501 Maine DHHS - ME CDC
Anna Krueger
N/A 8/3/2026 MHDO Ad Hoc Request – Level I CY 2018-2025 All-Payer Claims Data The Maine CDC is conducting an analysis on the burden of Maine's respiratory virus seasons. Respiratory virus control is often discussed to reduce hospitalizations and deaths. ME CDC data were used to rank the burden of Maine’s respiratory virus seasons from 2018 to 2025. MHDO all-payer claims data will be used to look for any correlations between respiratory virus burden and acute otitis media (ear infection) claims during that time period. The hypothesis is that reduced burden (seen by lower burden seasons) comes with reduced acute otitis media. If supported, the findings could have implications in motivation to reduce the spread of respiratory viruses beyond hospitalization and deaths, including reducing healthcare costs, disease burden, and antibiotic use. Any resulting public health insights or policy recommendations would benefit the citizens of Maine. Pending
2025090801 Agency for Healthcare Research and Quality
Pamela Owens
N/A 6/18/2026 MHDO Level II Q1 2025 – Q4 2026 Hospital Inpatient and Outpatient Encounters including City/ZIP, DOB. FIPS Codes and Race & Ethnicity This data request seeks to add additional years of MHDO data to previously approved data request number 2024051303. The Healthcare Cost and Utilization Project (HCUP) are a family of healthcare databases and related software tools and products developed through a Federal-State-Industry partnership and sponsored by the Agency for Healthcare Research and Quality (AHRQ). https://datatools.ahrq.gov/hcup-fast-stats/. HCUP databases bring together the data collection efforts of State data organizations, hospital associations, private data organizations, and the Federal government to create a national information resource of encounter-level healthcare data. These national databases enable research on a broad range of health policy issues, including cost and quality of health services, medical practice patterns, access to healthcare programs, and outcomes of treatments at the national, State, and local market levels. The purpose of this project is to continue to integrate MHDO de-identified hospital encounter data with HCUP datasets to enhance healthcare research and analysis. These data will continue to provide insights into hospital care trends, patient safety, and healthcare costs, supporting evidence-based policy decisions and improving healthcare outcomes for Maine residents and nationally. Released
2026020504 MaineGeneral Medical Center N/A 6/10/2026 MHDO Level II Q3 2022 – Q2 2025 Medical Claims, Medical Eligibility, Pharmacy Eligibility, Pharmacy Claims, Dental Claims, Dental Eligibility, Hospital Inpatient Encounters, Hospital Outpatient Encounters including City/Zip and Practitioner Identifiers. MaineGeneral Medical Center (MGMC), serving 86 communities across central Maine, seeks to use MHDO data to strengthen data- driven decision-making in support of high-quality, accessible, and cost-effective care. As one of the largest health systems in the state, MGMC is responsible for ensuring that clinical services, workforce planning, and resource allocation align with the evolving health needs of the populations we serve. The purpose of this project is to analyze hospital discharge, outpatient encounter, and claims data from MHDO to better understand utilization patterns, population health trends, cost drivers, and service gaps across our service area. Particular areas of focus include primary care services, chronic disease management (including cardiovascular disease, diabetes, and cancer), and access to care in rural communities. MHDO data will be used in aggregate form to evaluate inpatient and outpatient utilization trends by diagnosis, service line, payer, and geography; identify variation in admissions, readmissions, emergency department use, and preventable hospitalizations; assess quality and safety indicators; and analyze cost and utilization patterns relevant to value-based care arrangements. The data will also inform strategic planning, medical staff development, facility planning, and service line expansion, as well as support Certificate of Need applications and reporting associated with Accountable Care Organizations, Medicare Shared Savings Program participation, and commercial payer contracts. In addition, market share and utilization analyses will support collaboration with member organizations and prospective affiliates, with the overarching goal of improving care delivery across the region. This project will benefit the people of Maine by enabling more precise identification of service gaps, strengthening quality and safety initiatives, supporting sustainable participation in value-based care models, and identifying cost-saving opportunities that help preserve access to care. By using MHDO data to guide strategic and operational decisions, MGMC can enhance care coordination, strengthen local healthcare infrastructure, and ensure that resources are directed where they are most needed across central Maine. Released
2026030503 RAND
Brian Briscombe
N/A 5/7/2026 MHDO Level II Q1 2023 – Q4 2025 Medical Claims including Date of Birth. This data request seeks to add additional years of MHDO data (Q1 2023 – Q4 2025) to previously approved data request number 2022121201. Researchers at the RAND Corporation will reprice commercial medical claims from MHDO using Medicare's groupers and pricing algorithms and will release a public research report that includes commercial prices as a percent of Medicare prices for hospitals and hospital systems identified by name. This research report will update and expand on the findings in previous RAND reports released in May 2019, September 2020 and December 2024. The public research report will include hospitals from around the country and will be created using claims data from three sources: self-insured employers, state-based all payer claims databases (APCDs), and health plans. We will exclude patients aged 65+ because their care may have been partially covered by public insurance (our study is focused on prices paid for patients with commercial insurance). RAND will not publish prices by payer and will only publish by facility. . This project will benefit the citizens of Maine by providing them with a detailed hospital price report for hospitals in Maine, as well as comparisons among hospitals in Maine versus hospitals in other states. Key audiences for the report will be (1) self-insured employers that participate in the study and that are assessing the reasonableness of the prices they are paying for hospital care, (2) other employers that are struggling with high and rising health care costs and that want to better understand patterns and trends in hospital prices, and (3) policymakers and researchers who are concerned with hospital pricing and price transparency. Released
2026030501 ME CDC
Angie Bellefleur
N/A 5/7/2026 MHDO Level II Q1 2026 – Q4 2026 Hospital Inpatient Encounters including City/ZIP, Date of Birth, FIPS Code and Race & Ethnicity. This data request seeks to add an additional year of MHDO data to previously approved data request number 2024121601. In 2021 Maine received funds to become part of the National Alliance for Innovation on Maternal Health (AIM). This ongoing initiative involves engaging hospitals in the implementation of patient safety bundles designed to improve the quality of health care provided to women around the time of pregnancy with the overall goal to reduce maternal mortality and morbidity. Currently, 49 US states are enrolled in the AIM initiative. As part of this initiative, states are asked to provide administrative data on severe maternal morbidity by hospital (de-identified) to monitor progress on QI efforts. Maine selected to focus on maternal hypertension as the state's first QI initiative. There are currently 20 Maine birthing hospitals currently participating in the project. Maine people will benefit from a data-driven approach to implementing best practices related to reducing maternal morbidity and improving care for pregnant people with severe hypertension. MHDO data will allow for ongoing monitoring of maternal morbidity to assess the effectiveness of the implementation of these evidence-based practices in Maine hospitals. Pending
2026022502 University of North Carolina at Chapel Hill
Tugba Somuncu
N/A 4/30/2026 MHDO Ad Hoc Request – Level I CY 2005 – 2025 Aggregate Daily Emergency Department Counts by County This project seeks to understand how extreme weather events affect emergency department (ED) visits in the United States. The study will assess whether ED visit volumes change during extreme weather and which types (e.g., heat stress or cold exposure) are most affected. The project will also evaluate how hospital closures influence healthcare access and utilization during these events, particularly in rural areas like Maine where closures may further limit timely care. Findings will inform climate adaptation strategies, highlight disparities in healthcare access, and clarify the public health impacts of weather-related ED use. To capture daily variation in temperature and control for underlying seasonal utilization patterns, our project requires observing ED utilization at the daily level across multiple years. Daily county-level temperature data will be linked with ED records from 2005 to 2025 to examine whether extreme heat or cold leads to increased ED visits. In the second phase, we will analyze the impact of hospital closures, using publicly available data from the Sheps Center, to assess how closures influence ED utilization patterns during extreme weather. This study aims to identify both the direct health impacts of climate extremes and how the adaptive responses shaped by healthcare access constraints influence responses to those events. Benefits to the Citizens of Maine: As one of the most rural states in the nation, many Maine communities often face long travel times to the nearest emergency department, a problem that worsens when facilities close. These dangers are compounded by the fact that Maine has the oldest median age of any state, and older adults are disproportionately vulnerable to temperature extremes and needing emergency care during such events. By examining how extreme weather affects ED utilization and how hospital closures restrict access to timely care in rural areas, this project will provide Maine's policymakers, health systems, and emergency planners with actionable evidence to guide decisions about healthcare infrastructure, climate adaptation, and targeted investments in high risk Maine communities. Withdrawn
2025081802 Cigna Healthcare
Donna Atienza
N/A 4/9/2026 MHDO Level II Q1 2023 – Q4 2025 Medical Claims including Anonymous Payer ID This Cigna Healthcare (CH) project is a continuation of previously authorized data request 2023090102 and 2021051901. The results of that project supported our negotiation with our providers to conform to current market rates, and we are requesting another two years of MHDO claims data. One part of the data analysis focuses on the reasonableness of medical costs in the commercial market. The data will provide CH the ability to assess health care costs for the Cigna network vis-à-vis other major carriers in the Maine commercial market. Second, we intend to look at a number of areas of interest to assess patterns of care that may be a concern in terms of appropriateness or perhaps from a geographic availability/coverage perspective, such as use of high technology services (e.g. MRI, Pet Scans, CAT Scans), use of high cost therapies, or high volume implants (e.g. hips and knees). This project will increase transparency around the affordability of medical care and the ability to better understand where Mainers aligned with Cigna can obtain services at rates that are reasonably compared to market norms. This should lead to improved decisions around where to obtain care and allow Cigna to better deal with rates that are dramatically above standard market pricing. In addition, our Medical Quality teams will use the MHDO data to identify patterns of care and compare those patterns to internal patterns to better understand where opportunities for improvement might exist. The ultimate goal is to improve the quality and affordability of care for our members living in the state of Maine. Released
2025080501 Healthcare Purchaser Alliance of Maine
Sara Fitzgerald
Certilytics 2/12/2026 MHDO Level II Q1 2022 – Q3 2026 Medical Claims, Medical Eligibility, Pharmacy Claims and Pharmacy Eligibility, including City/ZIP, Practitioner Identifiers and Anonymous Payer Name/ID. The Healthcare Purchaser Alliance of Maine (HPA) is requesting Level II MHDO data to provide Maine employers and health trusts (both public and private purchasers) with statewide benchmarking information on Per Member Per Month (PMPM) cost, service utilization, member cost sharing, disease prevalence, and quality measures (e.g., cancer screening rates, preventive visit utilization, non-emergent emergency department use, etc.). The HPA will incorporate these benchmarks into employer-specific claims-based reporting that we produce using data extracts provided by insurers, Third-Party Administrators (TPAs), and Pharmacy Benefits Managers (PBMs). These benchmarks will allow Maine employers to understand how their population of insured employees and dependents compares to a large swath of Maine’s commercial market on a set of key healthcare measures. In addition, the HPA may use the data to understand how proposed legislation may impact healthcare affordability, access, and quality in Maine; generate statewide claims-based quality measures, including cancer screening rates; inform grant proposals to help address healthcare affordability; and identify emerging cost and/or utilization trends across medical and pharmacy claims. This project will benefit the people of Maine by providing insight into statewide or regional trends impacting healthcare affordability, access, and quality through presentations to policymakers and HPA members; and benchmarking reports delivered to some of Maine’s largest employers and trusts who help to shape the commercial health insurance market in the state. Released

Note: If you are interested in seeing requests prior to the last on this page, you will find them on MHDO's Data Requests - Archived web page.